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Purpose <p>To systematically review qualitative studies on outcomes, needs, experiences, preferences, concerns and health-related quality of life (HRQoL) of people surviving cancer in Europe in the last decade.</p> Methods <p>Protocol registered (<a href="https://www.crd.york.ac.uk/PROSPERO">https://www.crd.york.ac.uk/PROSPERO</a>, ID575065). Inclusion criteria: studies with qualitative methods, constructs related to HRQoL, and&#xa0;adults surviving cancer in Europe. The search was conducted in PubMed and Scopus since 2013. Abstracts and full text were revised, data extracted and study risk of bias assessed independently by two researchers. The primary outcomes were the themes arising from each study. A thematic analysis stratified according to the study objective was undertaken by grouping themes into categories.</p> Results <p>Of 18,256 articles identified, 43 fulfilled the inclusion criteria: 16 studies with a generic objective and 27 with specific objectives. Seven categories (57 themes) emerged from the studies with a generic focus: Clinical Management (n = 16), Symptoms and Physical Function (n = 5), Psychological Function (n = 21), Social Function (n = 18), HRQoL (n = 3), Life Disruption (n = 6), and Individual Factors (n = 1). The 12 studies focused on treatment and care experiences stand out among those with specific objectives, with most themes fitting into the same seven categories.</p> Conclusions <p>Results clearly showed the predominance of the social and psychological function domains over physical domains among people surviving cancer, additionally identifying specific needs in clinical management, such as information and communication, and relationship with and support from professionals. Therefore, these aspects should be incorporated into the evaluation of patient-centred initiatives for people surviving cancer. Limitations: only two databases were searched, and most European countries were not represented.</p>

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Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年1月23日

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  • Clara Amat-Fernandez,
  • Olatz Garin,
  • Ricardo Luer-Aguila,
  • Yolanda Pardo,
  • Renata Briseño,
  • Catalina Lizano-Barrantes,
  • Leslye Rojas-Concha,
  • Melissa S.Y. Thong,
  • Giovanni Apolone,
  • Cinzia Brunelli,
  • Augusto Caraceni,
  • Norbert Couespel,
  • Nanne Bos,
  • Mogens Groenvold,
  • Stein Kaasa,
  • Gennaro Ciliberto,
  • Claudio Lombardo,
  • Ricardo Pietrobon,
  • Gabriella Pravettoni,
  • Aude Sirven,
  • Hugo Vachon,
  • Alexandra Gilbert,
  • Galina Velikova,
  • Montse Ferrer,
  • Massimo Costantini,
  • Madeline Pe,
  • Chiara Marzorati,
  • Antonio Tanzilli,
  • Morten Aagaard Petersen,
  • Aline Machiavelli,
  • Joachim Widder,
  • Helidon Nina,
  • Philip Debruyne,
  • Ivaylo Petrov,
  • Vesna Ramljak,
  • Maria Krini,
  • Tomas Kazda,
  • Helle Pappot,
  • Liina Pääbo,
  • Vahur Valvere,
  • Johanna Mattson,
  • Ann Bredart,
  • Carole Boulec,
  • Mariaalice Borinelli-Franzoi,
  • Ekaterina Kldiashvili,
  • Christian Brandts,
  • Nicole Erickson,
  • Volker Arndt,
  • Olga Balaoura,
  • Horvath Orsolya,
  • Claire Donohoe,
  • Alessandro Rizzo,
  • Andrea Pace,
  • Sandra Lejniece,
  • Audrius Dulskas,
  • Vadim Pogonet,
  • Lonneke van de Poll,
  • Marianne Grønlie Guren,
  • Iwona Ługowska,
  • Maria Litwiniuk,
  • Maria José Bento,
  • Tudor Ciuleanu,
  • Milana Mitrić,
  • Ivica Ratosa,
  • Michal Chovanec,
  • Maria Vieito,
  • Héctor Aguilar,
  • Eva Ruiz,
  • Karin Ahlberg,
  • Eda Tanrikulu Simsek,
  • Mahmut Gumus,
  • Inke Minnée-van Braak,
  • Caitriona Higgins,
  • Laura Pinnavaia,
  • Carina Dantas,
  • Tapani Kalmi,
  • Áurea Martin

摘要

Purpose

To systematically review qualitative studies on outcomes, needs, experiences, preferences, concerns and health-related quality of life (HRQoL) of people surviving cancer in Europe in the last decade.

Methods

Protocol registered (https://www.crd.york.ac.uk/PROSPERO, ID575065). Inclusion criteria: studies with qualitative methods, constructs related to HRQoL, and adults surviving cancer in Europe. The search was conducted in PubMed and Scopus since 2013. Abstracts and full text were revised, data extracted and study risk of bias assessed independently by two researchers. The primary outcomes were the themes arising from each study. A thematic analysis stratified according to the study objective was undertaken by grouping themes into categories.

Results

Of 18,256 articles identified, 43 fulfilled the inclusion criteria: 16 studies with a generic objective and 27 with specific objectives. Seven categories (57 themes) emerged from the studies with a generic focus: Clinical Management (n = 16), Symptoms and Physical Function (n = 5), Psychological Function (n = 21), Social Function (n = 18), HRQoL (n = 3), Life Disruption (n = 6), and Individual Factors (n = 1). The 12 studies focused on treatment and care experiences stand out among those with specific objectives, with most themes fitting into the same seven categories.

Conclusions

Results clearly showed the predominance of the social and psychological function domains over physical domains among people surviving cancer, additionally identifying specific needs in clinical management, such as information and communication, and relationship with and support from professionals. Therefore, these aspects should be incorporated into the evaluation of patient-centred initiatives for people surviving cancer. Limitations: only two databases were searched, and most European countries were not represented.