From Patient to Person: A Journey Through the Narrative of Disease

Narrative medicine is defined as medicine practiced with the competence to absorb, interpret, and respond to narratives. We hereby present a resource compiling narrative medicine texts, aiming to make narratives created by patients and/or their families fully accessible to citizens, by developing a documentary database and describing its characteristics. Active bibliographic search, March–June 2022 for narratives in Spanish and/or Catalan written after the year 2000 by patients and/or their companions. Subsequently, narratives up to June 2024 were included. The compilation is available in a searchable and open-source web (https://osf.io/pk9b3/). Three hundred seventeen narratives, 50.14% written by women, are showing an increase from 2020 onwards. Texts are related to cancer/hematological diseases (45.11%), mental illnesses (10.41%), neurodegenerative diseases (9.4%). Personal stories (28.7%), autobiographical (11.29%), companion stories (5%), children’s or young adult stories/narratives (8.87%). There are studies, websites, and digital platforms that recognize the importance of narrative as part of the therapeutic process and how it improves the experience of illness (either one’s own or that of a family member). Despite this, to date, no one had compiled a collection of patient texts in Spanish and Catalan. For this reason, we believe our database is innovative and can pave the way for improving the patient-professional relationship.