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<p>Sibling relationships consist of positive and negative experiences, but they are perceived differently by neurotypical adults who have an autistic sibling. Cultural values shape familial expectations and family roles, which may affect sibling relationship quality. This is particularly relevant for families with strong collectivistic values, which may shape individuals’ experiences of having an autistic sibling. Characteristics at the family level may also contribute to this relationship. The study employed a mixed-methods approach to examine cultural values and family-level traits in relation to sibling relationship quality among neurotypical emerging adults with an autistic sibling. Twenty-four participants completed questionnaires assessing their affect, attitudes toward their autistic sibling, and endorsement of collectivistic values. Researchers subsequently conducted a 1-hour semi-structured interview focusing on participants’ family and sibling experiences. Quantitative analyses revealed that a stronger orientation toward collectivism significantly predicted higher levels of positive affect, both toward the sibling relationship and in general. Contextual factors, namely age difference and sibship size, moderated these associations. Qualitative analyses revealed themes demonstrating how cultural values shape familial roles and how autistic symptoms influence relationship dynamics. Participants who endorsed stronger collectivistic values reported greater positive affect, though these values may also serve as a source of stress. Family members of autistic individuals may adopt collectivistic values if they identify with a collective disability culture. Emerging adulthood poses distinctive challenges for neurotypical siblings, including the need to navigate the balance between caregiving responsibilities and personal independence. Exploring the lived experiences of emerging adults with autistic siblings in this study yields insightful meta-inferences that help bridge gaps in support systems for this population. Implications for educational and clinical practice are discussed.</p>

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“Family Over Everything”: Understanding the Relationship between Cultural Orientation and neurotypical-ASD Sibling Relationships in Emerging Adulthood in the United States

  • 期刊论文

  • 发表日期：

    2025年9月18日

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  • Sarah Guadarrama,
  • Janice N. Phung

摘要

Sibling relationships consist of positive and negative experiences, but they are perceived differently by neurotypical adults who have an autistic sibling. Cultural values shape familial expectations and family roles, which may affect sibling relationship quality. This is particularly relevant for families with strong collectivistic values, which may shape individuals’ experiences of having an autistic sibling. Characteristics at the family level may also contribute to this relationship. The study employed a mixed-methods approach to examine cultural values and family-level traits in relation to sibling relationship quality among neurotypical emerging adults with an autistic sibling. Twenty-four participants completed questionnaires assessing their affect, attitudes toward their autistic sibling, and endorsement of collectivistic values. Researchers subsequently conducted a 1-hour semi-structured interview focusing on participants’ family and sibling experiences. Quantitative analyses revealed that a stronger orientation toward collectivism significantly predicted higher levels of positive affect, both toward the sibling relationship and in general. Contextual factors, namely age difference and sibship size, moderated these associations. Qualitative analyses revealed themes demonstrating how cultural values shape familial roles and how autistic symptoms influence relationship dynamics. Participants who endorsed stronger collectivistic values reported greater positive affect, though these values may also serve as a source of stress. Family members of autistic individuals may adopt collectivistic values if they identify with a collective disability culture. Emerging adulthood poses distinctive challenges for neurotypical siblings, including the need to navigate the balance between caregiving responsibilities and personal independence. Exploring the lived experiences of emerging adults with autistic siblings in this study yields insightful meta-inferences that help bridge gaps in support systems for this population. Implications for educational and clinical practice are discussed.