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Purpose <p>In-person family navigation accelerates autism diagnosis; however, effectiveness of telehealth autism navigation is unknown. This study tested preliminary efficacy of telehealth autism navigation.</p> Method <p>In this site-randomized pilot trial of telehealth autism family navigation, 7 clinics (66 primary care providers) were trained in autism screening and randomized to family navigation versus usual care. 49 children aged 12–54&#xa0;months enrolled. We used Early Intervention/Early Childhood Special Education (EI/ECSE) and health records to compare navigation intervention and control arms on time from enrollment to EI/ECSE eligibility determination, percent receiving EI/ECSE eligibility determination within 6&#xa0;months, percent of children receiving EI/ECSE referrals within 6&#xa0;months, and percent receiving autism educational and medical diagnoses within 6&#xa0;months.</p> Results <p>In intention-to-treat analysis, 46.7% of the navigation (66.7% of those referred to EI/ECSE) and 36.8% of control families (87.5% of those referred to EI/ECSE) had EI/ECSE eligibility determinations. Median time to EI/ECSE eligibility determination was 66.5&#xa0;days in navigation and 120&#xa0;days in control. 70% of navigation and 42.1% of control children were referred to EI/ECSE. 23.8% of navigation and 0% of control children received an autism educational eligibility within 6&#xa0;months, but 10% of navigation children versus 42.1% of control had autism medical diagnostic determination within 6&#xa0;months. 50% of the navigation arm had &lt; 4 navigator interactions.</p> Conclusion <p>Telehealth family navigation shows preliminary promise for improving access to services in EI/ECSE, especially for referral and evaluation. Access to medical diagnostic evaluation may need additional support. A larger trial can investigate longer-term services receipt.</p> ClinicalTrials.gov ID <p>NCT04861740, Registered 4/7/2021.</p>

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Preliminary Efficacy of Telehealth Family Navigation for Early Autism Services Access

  • 期刊论文

  • 发表日期：

    2025年12月29日

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  • Katharine E. Zuckerman,
  • Michelle Owens Reinitz,
  • Mohadeseh Solgi,
  • Alicia Feryn,
  • Michelle Tae,
  • Patricia Cavanaugh,
  • Joseline Raja-Vora,
  • Eric Fombonne

摘要

Purpose

In-person family navigation accelerates autism diagnosis; however, effectiveness of telehealth autism navigation is unknown. This study tested preliminary efficacy of telehealth autism navigation.

Method

In this site-randomized pilot trial of telehealth autism family navigation, 7 clinics (66 primary care providers) were trained in autism screening and randomized to family navigation versus usual care. 49 children aged 12–54 months enrolled. We used Early Intervention/Early Childhood Special Education (EI/ECSE) and health records to compare navigation intervention and control arms on time from enrollment to EI/ECSE eligibility determination, percent receiving EI/ECSE eligibility determination within 6 months, percent of children receiving EI/ECSE referrals within 6 months, and percent receiving autism educational and medical diagnoses within 6 months.

Results

In intention-to-treat analysis, 46.7% of the navigation (66.7% of those referred to EI/ECSE) and 36.8% of control families (87.5% of those referred to EI/ECSE) had EI/ECSE eligibility determinations. Median time to EI/ECSE eligibility determination was 66.5 days in navigation and 120 days in control. 70% of navigation and 42.1% of control children were referred to EI/ECSE. 23.8% of navigation and 0% of control children received an autism educational eligibility within 6 months, but 10% of navigation children versus 42.1% of control had autism medical diagnostic determination within 6 months. 50% of the navigation arm had < 4 navigator interactions.

Conclusion

Telehealth family navigation shows preliminary promise for improving access to services in EI/ECSE, especially for referral and evaluation. Access to medical diagnostic evaluation may need additional support. A larger trial can investigate longer-term services receipt.

ClinicalTrials.gov ID

NCT04861740, Registered 4/7/2021.