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<p>First-hand research on siblings of children with autism spectrum disorders (ASD) is limited. This study investigated the lived experiences of typically developing siblings (TDS) of children with ASD using photovoice. Seven children, aged 9–11, who have siblings with ASD in the early childhood period (aged 3–8), participated in this action research study. Semi-structured interviews and a focus group discussion were conducted to explore the meaning of the photographs taken by TDS. The data were analyzed using a four-stage approach: visual analysis of the photographs, content analysis of the interviews, cross-comparison, and theorization. The findings are presented in three themes: <i>ASD through a sibling’s eyes</i>,<i> being a sibling of a child with ASD</i>,<i> and emerging from the shadow of ASD.</i> This study, conducted with young siblings, was promising in gathering data from siblings as primary informants. The strengths and limitations of the study are presented, and recommendations are provided.</p>

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A Photovoice Study on the Experiences of Typically Developing Siblings of Children with Autism Spectrum Disorders: “Autism: A Room with Multiple Doors”

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年4月9日

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  • Funda Ün Yumrutepe,
  • Hatice Şengül Erdem,
  • Yeşim Güleç Aslan

摘要

First-hand research on siblings of children with autism spectrum disorders (ASD) is limited. This study investigated the lived experiences of typically developing siblings (TDS) of children with ASD using photovoice. Seven children, aged 9–11, who have siblings with ASD in the early childhood period (aged 3–8), participated in this action research study. Semi-structured interviews and a focus group discussion were conducted to explore the meaning of the photographs taken by TDS. The data were analyzed using a four-stage approach: visual analysis of the photographs, content analysis of the interviews, cross-comparison, and theorization. The findings are presented in three themes: ASD through a sibling’s eyes, being a sibling of a child with ASD, and emerging from the shadow of ASD. This study, conducted with young siblings, was promising in gathering data from siblings as primary informants. The strengths and limitations of the study are presented, and recommendations are provided.