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Aim <p>With improved diagnostics and therapy, more children and adolescents with chronic and rare diseases are reaching adulthood. As a&#xa0;result, the need for adult medicine specialists for the continued care of these patients is increasing. In this survey, the patients at the University Hospital Innsbruck for Pediatrics (departments: Gastroenterology and Hepatology, Hematology and Oncology, Nephrology, Endocrinology, Diabetology, Rheumatology, Neuropediatrics, Inherited metabolic Disorders, Pulmonology and Allergology, Cardiology, and Cystic Fibrosis) who are due for transition were recorded. This survey was intended to serve as a&#xa0;basis for identifying potential improvements at the interface between pediatrics and adult medicine.</p> Methods <p>As a&#xa0;cross-sectional survey, the number of patients in the pediatric specialty departments for the year 2023 was recorded. The total number (<i>n</i> = 12,078) was divided into under 16&#xa0;years of age (<i>n</i> = 9635), between 16&#xa0;and 18&#xa0;years of age (<i>n</i> = 1288), and over 18&#xa0;years of age (<i>n</i> = 1155). To explore the challenges of transition, semi-structured interviews were conducted with the heads of the pediatric specialty areas or with a&#xa0;deputy.</p> Results <p>Of the 12,078 patients, 21.83% of patients in the field of inherited metabolic disorders and 14.01% of patients in the field of cardiology (congenital heart defects) were over 18&#xa0;years of age. In the fields of cystic fibrosis and hematology and oncology, the proportion of patients over 18&#xa0;years of age was 53.87% and 19.67%, respectively. In these two fields, patients remain under pediatric care by agreement, and the care of these patients is subject to a&#xa0;clearly defined transition process within the clinic. In the remaining departments, a&#xa0;completed transition process can be observed. The interviews confirmed the available figures by describing the status of the transition in each department.</p> Conclusion <p>In summary, the transition is already taking place in the majority of pediatric specialty departments. There is potential for further development in the fields of inherited metabolic disorders and cardiology, while the fields of cystic fibrosis and hematology and oncology have their own transition model.</p>

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Transition und Transfer von der Pädiatrie in die Erwachsenenmedizin

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年3月18日

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  • Valentina Obermayr,
  • Ingrid Pichler,
  • Dorothea Appelt,
  • Matthias Baumann,
  • Elisabeth Binder,
  • Ralf Geiger,
  • Klaus Kapelari,
  • Thomas Müller,
  • Evelyn Rabensteiner,
  • Michaela Sailer-Höck,
  • Siegfried Waldegger,
  • Anna Zschocke,
  • Sabine Scholl-Bürgi,
  • Daniela Karall

摘要

Aim

With improved diagnostics and therapy, more children and adolescents with chronic and rare diseases are reaching adulthood. As a result, the need for adult medicine specialists for the continued care of these patients is increasing. In this survey, the patients at the University Hospital Innsbruck for Pediatrics (departments: Gastroenterology and Hepatology, Hematology and Oncology, Nephrology, Endocrinology, Diabetology, Rheumatology, Neuropediatrics, Inherited metabolic Disorders, Pulmonology and Allergology, Cardiology, and Cystic Fibrosis) who are due for transition were recorded. This survey was intended to serve as a basis for identifying potential improvements at the interface between pediatrics and adult medicine.

Methods

As a cross-sectional survey, the number of patients in the pediatric specialty departments for the year 2023 was recorded. The total number (n = 12,078) was divided into under 16 years of age (n = 9635), between 16 and 18 years of age (n = 1288), and over 18 years of age (n = 1155). To explore the challenges of transition, semi-structured interviews were conducted with the heads of the pediatric specialty areas or with a deputy.

Results

Of the 12,078 patients, 21.83% of patients in the field of inherited metabolic disorders and 14.01% of patients in the field of cardiology (congenital heart defects) were over 18 years of age. In the fields of cystic fibrosis and hematology and oncology, the proportion of patients over 18 years of age was 53.87% and 19.67%, respectively. In these two fields, patients remain under pediatric care by agreement, and the care of these patients is subject to a clearly defined transition process within the clinic. In the remaining departments, a completed transition process can be observed. The interviews confirmed the available figures by describing the status of the transition in each department.

Conclusion

In summary, the transition is already taking place in the majority of pediatric specialty departments. There is potential for further development in the fields of inherited metabolic disorders and cardiology, while the fields of cystic fibrosis and hematology and oncology have their own transition model.