The Juvenile Arthritis Quality of Life Questionnaire in patients with juvenile idiopathic arthritis: Turkish version, validity, and reliability study

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发表日期：

2024年4月15日

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Yahya Doğan,
Nur Banu Karaca,
Sinan Buran,
Orkun Tüfekçi,
Ege Nur Atabey Gerlegiz,
Emil Aliyev,
Yağmur Bayındır,
Yelda Bilginer,
Edibe Ünal,
Seza Özen

摘要

Introduction

This study aimed to assess the cultural adaptation, validity, and reliability of the Turkish version of the Juvenile Arthritis Quality of Life Questionnaire (JAQQ) in patients with juvenile idiopathic arthritis (JIA).

Methods

A total of 100 JIA patients (64% female), aged 9 to 18 years, participated in the study conducted at a tertiary care university hospital. The JAQQ was culturally adapted through a rigorous translation process and administered alongside established measures, including the Childhood Health Assessment Questionnaire (CHAQ), Juvenile Arthritis Biopsychosocial Questionnaire (JABQ), and Children’s Depression Inventory (CDI). Validity and reliability were evaluated using Spearman’s correlation coefficients, Cronbach’s alpha, intraclass correlation coefficient (ICC), standard error of the mean (SEM), and minimal detectable change (MDC).

Results

The Turkish version of JAQQ exhibited high convergent validity, correlating significantly with CHAQ, JABQ, and CDI. No floor or ceiling effects were observed in the total JAQQ score, indicating a balanced assessment. Internal consistency was excellent (Cronbach’s α = 0.948), and test–retest reliability was satisfactory (ICC = 0.913). SEM and MDC₉₅ values were 0.357 and 0.99, respectively.

Conclusions

The Turkish adaptation of JAQQ emerges as a valid and reliable instrument for comprehensively assessing the health-related quality of life in children and adolescents diagnosed with JIA. The questionnaire’s robust psychometric properties, coupled with distinctive features like individualized assessment, highlight its potential as a valuable tool for both clinical assessment and scientific research in the field of pediatric rheumatology.

Key Points

• The Juvenile Arthritis Quality of Life Questionnaire (JAQQ) is an important scale that evaluates the quality of life of children with Juvenile Idiopathic Arthritis (JIA).

• JAQQ is known and used in the field of pediatric rheumatology in Turkey, but its Turkish adaptation has not been made before.

• Our study includes 100 JIA patients aged between 9 and 18 years and shows that the Turkish version of JAQQ is valid and reliable in measuring the quality of life of these children.

• This research contributes to the accurate assessment of the quality of life in Turkish children diagnosed with JIA, providing valuable insights for both clinical and scientific studies.