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Background <p>Cancer survivors have an increased risk of somatic and psychosocial late effects, some of which only manifest themselves decades after end of treatment. Guidelines recommend risk-adapted, lifelong follow-up care—to which, however, less than 5% of survivors in Germany are estimated to continue. A&#xa0;national long-term aftercare network is intended to close this gap in care through specialized structures.</p> Methods <p>In a&#xa0;survey, 13&#xa0;centers of the nationwide long-term aftercare network LE-Na were asked to provide information on the current financing of long-term follow-up structures.</p> Results <p>Each year, the centers treat around 2800&#xa0;survivors of pediatric cancer and around 2000&#xa0;young adult cancer survivors. The long-term follow-up core teams are often, and in some cases predominantly, financed by temporary third-party funding, which does not guarantee permanent care. The financing of services varies greatly; central services in particular, such as integrated psychosocial care, are not or hardly billable. In the majority of centers (77%, 10/13), the spatial capacities cover the demand, but over a&#xa0;third (38%, 5/10) sees no opportunities for growth. Current billing models are complex and inconsistent. At the same time, the centers emphasize the need for financing models that reflect treatment complexity and bundled service offerings.</p> Conclusion <p>Sustainable financing concepts for all professional groups involved are necessary for continuous aftercare. There is a&#xa0;need for harmonized, clear guidelines for transparent, comprehensive funding to ensure high-quality follow-up care.</p>

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Finanzierung der Langzeitnachsorge nach Krebs im Kindes‑, Jugend- und jungen Erwachsenenalter

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2025年8月18日

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  • Magdalena Balcerek,
  • Katja Baust,
  • Desiree Grabow,
  • Gabriele Calaminus,
  • Thorsten Langer,
  • Judith Gebauer

摘要

Background

Cancer survivors have an increased risk of somatic and psychosocial late effects, some of which only manifest themselves decades after end of treatment. Guidelines recommend risk-adapted, lifelong follow-up care—to which, however, less than 5% of survivors in Germany are estimated to continue. A national long-term aftercare network is intended to close this gap in care through specialized structures.

Methods

In a survey, 13 centers of the nationwide long-term aftercare network LE-Na were asked to provide information on the current financing of long-term follow-up structures.

Results

Each year, the centers treat around 2800 survivors of pediatric cancer and around 2000 young adult cancer survivors. The long-term follow-up core teams are often, and in some cases predominantly, financed by temporary third-party funding, which does not guarantee permanent care. The financing of services varies greatly; central services in particular, such as integrated psychosocial care, are not or hardly billable. In the majority of centers (77%, 10/13), the spatial capacities cover the demand, but over a third (38%, 5/10) sees no opportunities for growth. Current billing models are complex and inconsistent. At the same time, the centers emphasize the need for financing models that reflect treatment complexity and bundled service offerings.

Conclusion

Sustainable financing concepts for all professional groups involved are necessary for continuous aftercare. There is a need for harmonized, clear guidelines for transparent, comprehensive funding to ensure high-quality follow-up care.