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<p>For certain parameters related to the quality of care, the patients’ evaluation is the best source of information. These include particular symptoms or functional impairments that can be assessed in standardized surveys via patient-reported outcomes (PROs). Since 2016 and 2018, multicentric cohort studies have been established in certified prostate and colorectal cancer centers, in which patients are surveyed before and at 1&#xa0;year after treatment initiation and the survey results are coupled to clinical data. In the meantime, around 80,000&#xa0;patients with prostate cancer and 15,000&#xa0;patients with colorectal cancer from Germany, Austria, and Switzerland have participated. Participating centers receive annual reports in which they can compare their results with those of other centers. These reports aim to promote mutual learning and stimulate quality-improvement initiatives. Moreover, the PROs can be utilized in many different ways, for example to quantify disease sequelae or treatment side effects. Among other things, these data can bring sequelae and side effects that are suffered by many patients but which have not yet been adequately discussed into focus, for example urinary incontinence after prostate cancer or the financial difficulties of cancer patients.</p>

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Patient-Reported Outcomes zur Messung der Ergebnisqualität bei Prostata- und Darmkrebs – die PCO- und EDIUM-Studien in zertifizierten Krebszentren

  • 期刊论文

  • 发表日期：

    2025年4月28日

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  • Christoph Kowalski,
  • Clara Breidenbach,
  • Nora Tabea Sibert

摘要

For certain parameters related to the quality of care, the patients’ evaluation is the best source of information. These include particular symptoms or functional impairments that can be assessed in standardized surveys via patient-reported outcomes (PROs). Since 2016 and 2018, multicentric cohort studies have been established in certified prostate and colorectal cancer centers, in which patients are surveyed before and at 1 year after treatment initiation and the survey results are coupled to clinical data. In the meantime, around 80,000 patients with prostate cancer and 15,000 patients with colorectal cancer from Germany, Austria, and Switzerland have participated. Participating centers receive annual reports in which they can compare their results with those of other centers. These reports aim to promote mutual learning and stimulate quality-improvement initiatives. Moreover, the PROs can be utilized in many different ways, for example to quantify disease sequelae or treatment side effects. Among other things, these data can bring sequelae and side effects that are suffered by many patients but which have not yet been adequately discussed into focus, for example urinary incontinence after prostate cancer or the financial difficulties of cancer patients.