<p>Device aided-therapies (DATs) improve health-related quality of life (HRQoL) in people with Parkinson’s disease (PwP). However, no studies comparing all DATs have been conducted to date. Our aim was to compare the effect of different DATs on HRQoL and other disease-related variables in PwP. Data from baseline (V1) and the 6-month follow-up visit (V3.6&#xa0;M) were collected from a descriptive, observational, prospective, multicenter, clinical registry conducted in Spain entitled DATs-PD GETM Spanish Registry. The primary endpoint was the change from V1 to V3.6&#xa0;M in the 39-item Parkinson’s Disease Questionnaire (PDQ-39) total score. Relative change (RC) and Cohen’s d (d) effect were applied. The effect over many other variables was also analyzed. HRQoL improved significantly in the entire cohort (N = 137) with a moderate decrease of 13.4% in the PDQ-39 total score (from 58.9 ± 22.9 at V1 to 51.0 ± 26.8 at V3.6&#xa0;M; d = 0.51; p &lt; 0.0001). No differences in the change of the PDQ-39 total score were detected between both subcutaneous therapies (i.e., foslevodopa/foscarbidopa [fLD/fCD] and continuous subcutaneous apomorphine infusion [CSAI]; p = 0.666) and between subcutaneous and enteral therapies (p = 0.721). Although a greater improvement in HRQoL was observed in PwP treated with deep brain stimulation (DBS) (N = 30; RC = -26.3%; d = 0.83; p = 0.002) compared to those who received a pump system (N = 107; RC = -10.2%; d = 0.41; p = 0.003) (p = 0.009), the effect was not significant after adjustment for age, sex, and disease duration (p = 0.161). Off time, dyskinesia, motor symptoms, and non-motor symptoms improved significantly in the entire cohort. HRQoL improved in PwP after being treated with a DAT.</p>

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Impact of device-aided therapies on quality of life in patients with Parkinson’s disease. A comparative multicenter observational study

  • Diego Santos-García,
  • Ángela Solleiro,
  • Guillermo González-Ortega,
  • Pablo Mir,
  • Nuria López-Ariztegui,
  • Inés Legarda,
  • Maria Esther Rojas-Pérez,
  • Alejandro Peral-Quirós,
  • Iria Cabo,
  • Rocío García-Ramos,
  • Pilar Sánchez-Alonso,
  • Jorge Hernández-Vara,
  • Marta Blázquez-Estrada,
  • Álvaro Sánchez-Ferro,
  • A.D. Adarmes Gómez,
  • D. Alonso-Modino,
  • M. Álvarez Sauco,
  • A. Ávila Rivera,
  • S. Belmonte,
  • M. Blázquez-Estrada,
  • L. Caballero Sánchez,
  • N. Caballol Pons,
  • I. Cabo,
  • D. Campo Caballero,
  • S. Cantarero Duque,
  • F. Carrillo García,
  • E. Casas Peña,
  • B. Castaño García,
  • A. M. Castellano Guerrero,
  • A. Castrillo Sanz,
  • D. M. Cerdán Santacruz,
  • C. Cores Bartolomé,
  • A. Cost Foraster,
  • E. Cubo Delgado,
  • T. Delgado Ballestero,
  • S. Escalante Arroyo,
  • F. Escamilla Sevilla,
  • S. Fanjul Arbos,
  • C. Feliz Feliz,
  • G. Fernández-Pajarín,
  • A. Fernández Revuelta,
  • T. Fernández Valle,
  • E. Freire Álvarez,
  • E. Gamo González,
  • C. García Fernández,
  • A. García Herruzo,
  • R. García-Ramos,
  • P. García Rúiz,
  • L. Garrote Espina,
  • M. P. Gil Villar,
  • J. C. Gómez Esteban,
  • C. Gómez López de San Román,
  • C. Gómez Rapela,
  • M. V. González,
  • J. González Ardura,
  • G. González-Ortega,
  • N. González Rojas,
  • C. Hernández Javier,
  • J. Hernández-Vara,
  • S. Jesús Maestre,
  • I. Legarda Ramírez,
  • N. López-Ariztegui,
  • R. López Blanco,
  • D. López Dominguez,
  • L. López Manzanares,
  • E. López Valdés,
  • P. Lorenzo Barreto,
  • J. M. Lorenzo Brito,
  • D. Lozano,
  • D. Macías García,
  • C. J. Madrid Navarro,
  • S. Martí Martínez,
  • R. Martín García,
  • J. C. Martínez Castrillo,
  • M. Mata Álvarez Santullano,
  • A. Méndez Guerrero,
  • A. Mendoza Rodríguez,
  • P. Mir Rivera,
  • E. Mondragón Rezola,
  • A. Monterde Ortega,
  • M. I. Morales Casado,
  • L. Muñoz Delgado,
  • I. Muro,
  • S. Novo Ponte,
  • E. Ojeda Lepe,
  • L. Pardina Vilella,
  • I. Pareés Moreno,
  • J. M. Paz González,
  • A. Peral Quirós,
  • C. Pérez Calvo,
  • D. Pérez Rangel,
  • A. Perona Moratalla,
  • A. Planas-Ballvé,
  • P. Prendes Fernández,
  • L. Quibus Requena,
  • P. Rábano Suárez,
  • J. Ramírez,
  • A. Rivero de Aguilar Pensado,
  • E. Rojas-Pérez María,
  • C. Ribacoba Díaz,
  • J. C. Romero Fábrega,
  • M. Ruíz López,
  • J. Ruíz Martínez,
  • L. Samaniego Vinueza,
  • M. Eufrasio Martínez,
  • P. Sánchez Alonso,
  • A. Sánchez-Ferro,
  • A. Sánchez Rodríguez,
  • A. Sancho Saldana,
  • D. Santos-García,
  • B. Solano Vila,
  • A. Solleiro Vidal,
  • E. Suárez San Martín,
  • G. Tabar Comellas,
  • B. Tijero Merino,
  • M. F. Valero García,
  • L. Vela,
  • A. Vinagre Aragón,
  • L. Vivas Villacampa,
  • B. Vives Pastor

摘要

Device aided-therapies (DATs) improve health-related quality of life (HRQoL) in people with Parkinson’s disease (PwP). However, no studies comparing all DATs have been conducted to date. Our aim was to compare the effect of different DATs on HRQoL and other disease-related variables in PwP. Data from baseline (V1) and the 6-month follow-up visit (V3.6 M) were collected from a descriptive, observational, prospective, multicenter, clinical registry conducted in Spain entitled DATs-PD GETM Spanish Registry. The primary endpoint was the change from V1 to V3.6 M in the 39-item Parkinson’s Disease Questionnaire (PDQ-39) total score. Relative change (RC) and Cohen’s d (d) effect were applied. The effect over many other variables was also analyzed. HRQoL improved significantly in the entire cohort (N = 137) with a moderate decrease of 13.4% in the PDQ-39 total score (from 58.9 ± 22.9 at V1 to 51.0 ± 26.8 at V3.6 M; d = 0.51; p < 0.0001). No differences in the change of the PDQ-39 total score were detected between both subcutaneous therapies (i.e., foslevodopa/foscarbidopa [fLD/fCD] and continuous subcutaneous apomorphine infusion [CSAI]; p = 0.666) and between subcutaneous and enteral therapies (p = 0.721). Although a greater improvement in HRQoL was observed in PwP treated with deep brain stimulation (DBS) (N = 30; RC = -26.3%; d = 0.83; p = 0.002) compared to those who received a pump system (N = 107; RC = -10.2%; d = 0.41; p = 0.003) (p = 0.009), the effect was not significant after adjustment for age, sex, and disease duration (p = 0.161). Off time, dyskinesia, motor symptoms, and non-motor symptoms improved significantly in the entire cohort. HRQoL improved in PwP after being treated with a DAT.