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Purpose <p>The aim of the present study was to describe access to primary health care, adherence to preventive and surveillance recommendations, and the prevalence of late effects among long-term cancer survivors referred back to primary health care (PHC) after five years of treatment and follow-up at an Oncology High Complexity Care Center (CACON).</p> Methods <p>A descriptive cross-sectional study was conducted at the National Cancer Institute (INCA), in Brazil. Eligible participants were contacted by telephone and answered a structured questionnaire, with questions about sociodemographic data, lifestyle, and nutritional status, as well as on health promotion, prevention, and surveillance during the long-term cancer survivorship phase.</p> Results <p>Ninety-one cancer survivors participated in the study, with an average age of 69 ± 9.24&#xa0;years. The most commonly reported late sequelae included cognitive difficulties, hormonal symptoms, sleep-related disorders and chronic pain. Less than half of the study participants reported being referred to a PHC unit after cancer treatment. Receipt of a discharge summary to be presented to primary care providers was reported by only 11 participants (12.1%).</p> Conclusions <p>The specific needs of long-term cancer survivors require continuous follow-up by the health system, aiming to ensure comprehensive health care and quality of life.</p>

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Transition from oncology to primary care: experience of long-term cancer survivors in a Brazilian high-complexity center

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年7月25日

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  • Lidiane Araujo Cezário,
  • Luiza Vianna Conteville,
  • Juliane Alves da Silva,
  • Gabriela Villaça Chaves

摘要

Purpose

The aim of the present study was to describe access to primary health care, adherence to preventive and surveillance recommendations, and the prevalence of late effects among long-term cancer survivors referred back to primary health care (PHC) after five years of treatment and follow-up at an Oncology High Complexity Care Center (CACON).

Methods

A descriptive cross-sectional study was conducted at the National Cancer Institute (INCA), in Brazil. Eligible participants were contacted by telephone and answered a structured questionnaire, with questions about sociodemographic data, lifestyle, and nutritional status, as well as on health promotion, prevention, and surveillance during the long-term cancer survivorship phase.

Results

Ninety-one cancer survivors participated in the study, with an average age of 69 ± 9.24 years. The most commonly reported late sequelae included cognitive difficulties, hormonal symptoms, sleep-related disorders and chronic pain. Less than half of the study participants reported being referred to a PHC unit after cancer treatment. Receipt of a discharge summary to be presented to primary care providers was reported by only 11 participants (12.1%).

Conclusions

The specific needs of long-term cancer survivors require continuous follow-up by the health system, aiming to ensure comprehensive health care and quality of life.