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Purpose <p>Young adults with cancer (YAs) are rarely provided the necessary resources to make informed decisions about fertility preservation (FP) prior to beginning treatment. Digital decision aids are a promising strategy to ensure YAs receive timely, guideline-concordant information. We developed an alpha version Fertilit-<i>e</i>, a digital FP navigator, and conducted usability testing to obtain feedback from YAs.</p> Methods <p>We designed an alpha version of Fertilit-<i>e</i> that drew from existing evidence-based FP resources. Feedback was obtained from two waves of participants using a think-aloud framework, and modifications were made to the decision aid.</p> Results <p>Across waves, participants (<i>n</i> = 12) understood the purpose of Fertilit-<i>e</i> and thought modules were comprehensive and easy to understand. The usability of Fertilit-e was rated as excellent across waves and devices (iPad and computer). Participants suggested reducing the use of and better defining medical terminology and adding text to videos to enhance comprehensibility.</p> Conclusions <p>YAs reported that Fertilit-<i>e</i> provided important information regarding FP in an understandable manner. Participants made suggestions for how to improve comprehensibility and usability that will guide future iterations of Fertilit-<i>e</i>. For example, tailoring algorithms and reorganization may direct users to the most relevant information.</p> Implications for cancer survivors <p>Digital decision aids may be a feasible and useful strategy for helping YAs navigate decisions regarding whether to pursue FP at the time of diagnosis. Additional research is needed to refine and evaluate such tools before integration into routine care.</p>

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Initial development and usability testing of a digital fertility preservation navigator for newly diagnosed young adult cancer survivors

  • 期刊论文

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  • 发表日期：

    2026年7月21日

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  • Karly M. Ingram,
  • Stephanie Bunch,
  • Mollie V. Rose,
  • Janet A. Tooze,
  • Milena Duque,
  • David Victorson,
  • Betina Yanez,
  • Kristin N. Smith,,
  • Gwendolyn P. Quinn,
  • David P. Miller,
  • John M. Salsman

摘要

Purpose

Young adults with cancer (YAs) are rarely provided the necessary resources to make informed decisions about fertility preservation (FP) prior to beginning treatment. Digital decision aids are a promising strategy to ensure YAs receive timely, guideline-concordant information. We developed an alpha version Fertilit-e, a digital FP navigator, and conducted usability testing to obtain feedback from YAs.

Methods

We designed an alpha version of Fertilit-e that drew from existing evidence-based FP resources. Feedback was obtained from two waves of participants using a think-aloud framework, and modifications were made to the decision aid.

Results

Across waves, participants (n = 12) understood the purpose of Fertilit-e and thought modules were comprehensive and easy to understand. The usability of Fertilit-e was rated as excellent across waves and devices (iPad and computer). Participants suggested reducing the use of and better defining medical terminology and adding text to videos to enhance comprehensibility.

Conclusions

YAs reported that Fertilit-e provided important information regarding FP in an understandable manner. Participants made suggestions for how to improve comprehensibility and usability that will guide future iterations of Fertilit-e. For example, tailoring algorithms and reorganization may direct users to the most relevant information.

Implications for cancer survivors

Digital decision aids may be a feasible and useful strategy for helping YAs navigate decisions regarding whether to pursue FP at the time of diagnosis. Additional research is needed to refine and evaluate such tools before integration into routine care.