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Hämophilie-Behandlung in Österreich

  • Christoph Male,
  • Cihan Ay,
  • Richard Crevenna,
  • Sabine Eichinger,
  • Clemens Feistritzer,
  • Robert Füller,
  • Alexander Haushofer,
  • Andreas Kurringer,
  • Peter Neumeister,
  • Stephan Puchner,
  • Joachim Rettl,
  • Thomas Schindl,
  • Gerhard Schuster,
  • Rudolf Schwarz,
  • Michael Sohm,
  • Werner Streif,
  • Katharina Thom,
  • Barbara Wagner,
  • Eva Wissmann,
  • Karl Zwiauer,
  • Ingrid Pabinger

摘要

This guideline is intended to provide practical guidance for the diagnosis and treatment of haemophilia in Austria. Few randomized controlled interventional trials are available addressing the treatment of haemophilia, therefore recommendations are usually based on low level of evidence and represent expert consensus.

This guideline is based on the WFH guideline, published in 2020, and adapted according to the national circumstances and experience.

It includes recommendations and suggestions for diagnosis and follow-up visits and pharmacological therapies for treatment and prophylaxis. Further topics comprise special aspects in children and adults with severe haemophilia, outcome measurement, and management of trauma, special bleedings and interventions, including dental procedures, inhibitors, management of haemophilia carriers, and psychosocial aspects.