This study is to explore the self-management needs of adolescents with type 1 diabetes from the perspective of those who are currently undergoing or have recently completed the period of healthcare transition. One-on-one in-depth interviews were conducted with 13 adolescents between July 2024 and September 2024. Participants were recruited through purposive sampling at a tertiary hospital in Wenzhou, Zhejiang Province, China. The researchers utilized a content analysis method based on an information-motivation-behavioral skills framework. This study identified three primary themes and 12 sub-themes: (1) Filling the gaps in limited knowledge: access to specific information (disease medical information, healthcare transition information, and future planning information); (2) Promoting proactive transitional management: strengthening intrinsic and extrinsic motivations (strengthening intrinsic motivation: personalizing transition goals, and strengthening extrinsic motivation: giving positive feedback); (3) Responding to the challenges of healthcare transition: acquiring self-management skills (healthcare management skills, healthy living management skills, managing negative mood disorders, desire needed support over parents’ misconceptions, fighting loneliness through shared experiences, self-advocacy skills, and navigating the adult healthcare system).Conclusion: Our findings highlight the participants' needs for information, motivation, and self-management skills. A thorough understanding of the self-management needs of adolescents with type 1 diabetes is conducive to facilitating a more successful and supportive transition in these patient groups which will ultimately improve their long-term health outcomes and quality of life.<Table Float="No" ID="Taba"> <tgroup cols="2"> <colspec align="left" colname="c1" colnum="1" /> <colspec align="left" colname="c2" colnum="2" /> <tbody> <row> <entry align="left" nameend="c2" namest="c1"> What is Known: • Healthcare transition is a necessary stage, when adolescents with type 1 diabetes transfer to an adult healthcare system, and self-management ability is a critical factor in transition readiness. • The self-management needs of adolescents with type 1 diabetes are multidimensional. What is New: • Adolescents with type 1 diabetes generally lack awareness of information related to healthcare transition and are eager to provide information for future planning. Positive feedback and practical plans can effectively motivate them towards self-management. • Adolescents with type 1 diabetes require programs that encompass multiple self-management skills to enable them to cope flexibly with the challenges of the healthcare transition. </entry> </row> </tbody> </tgroup> </Table>

Self-management needs of adolescents with type 1 diabetes on transition to adult health care: a qualitative study

期刊论文
发表日期：

2025年8月9日

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Yi Qi,
Lin Xia,
Yifan Chen,
Yiwen Hu,
Ziling Xie,
Ting Yi,
Chaoqun Dong

摘要

This study is to explore the self-management needs of adolescents with type 1 diabetes from the perspective of those who are currently undergoing or have recently completed the period of healthcare transition. One-on-one in-depth interviews were conducted with 13 adolescents between July 2024 and September 2024. Participants were recruited through purposive sampling at a tertiary hospital in Wenzhou, Zhejiang Province, China. The researchers utilized a content analysis method based on an information-motivation-behavioral skills framework. This study identified three primary themes and 12 sub-themes: (1) Filling the gaps in limited knowledge: access to specific information (disease medical information, healthcare transition information, and future planning information); (2) Promoting proactive transitional management: strengthening intrinsic and extrinsic motivations (strengthening intrinsic motivation: personalizing transition goals, and strengthening extrinsic motivation: giving positive feedback); (3) Responding to the challenges of healthcare transition: acquiring self-management skills (healthcare management skills, healthy living management skills, managing negative mood disorders, desire needed support over parents’ misconceptions, fighting loneliness through shared experiences, self-advocacy skills, and navigating the adult healthcare system).

Conclusion: Our findings highlight the participants' needs for information, motivation, and self-management skills. A thorough understanding of the self-management needs of adolescents with type 1 diabetes is conducive to facilitating a more successful and supportive transition in these patient groups which will ultimately improve their long-term health outcomes and quality of life.

What is Known:

• Healthcare transition is a necessary stage, when adolescents with type 1 diabetes transfer to an adult healthcare system, and self-management ability is a critical factor in transition readiness.

• The self-management needs of adolescents with type 1 diabetes are multidimensional.

What is New:

• Adolescents with type 1 diabetes generally lack awareness of information related to healthcare transition and are eager to provide information for future planning. Positive feedback and practical plans can effectively motivate them towards self-management.

• Adolescents with type 1 diabetes require programs that encompass multiple self-management skills to enable them to cope flexibly with the challenges of the healthcare transition.