Scholarlink

Purpose <p>Access to appropriate and clean toilet facilities is essential for children with Hirschsprung Disease (HD). This study aims to assess how parents of children with HD perceive school toilet facilities.</p> Method <p>A cross-sectional survey was spread among parents of children aged 4–13 years with HD. The questionnaire addressed the frequency of toilet use and reasons for positive or negative experiences, with open- and closed-ended questions, for quantitatively and qualitatively analyses, respectively.</p> Results <p>Forty-four parents completed the questionnaire. The median age of the children was 7 years (IQR 5.3–10.8). Five (11.4%) children never used the school toilet, 16 (36.6%) used it for urination only, and 23 (52.3%) used it for urination and defecation. Positive parental experiences (29, 65.9%) were associated with the possibility for the child to clean themselves at school, while negative experiences (15, 38.6%) were linked to the absence of child-specific toilet rules. Qualitative analysis revealed six influencing themes; assistance, possibilities, school rules, medical nature, toilet facilities, and information.</p> Conclusion <p>Toilet avoidance for defecation remains common among children with HD. Improvements in toilet facilities, support, and individualized toilet policies may enhance well-being in this population.</p>

错误：搜索内容不能为空，请输入英文关键词
错误：关键词超出字数限制，请精简
高级检索

School toilet facilities perception of children with hirschsprung disease: a parents perspective

  • 期刊论文

  • 发表日期：

    2025年12月8日

查看全文
  • A. C. ter Schure,
  • S. P. van Streun,
  • C. M. C. de Beaufort,
  • J. van Leeuwen,
  • M. van Dorp,
  • S. van Velsen-Knobbout,
  • J. Bols,
  • M. A. Benninga,
  • J. P. M. Derikx,
  • R. R. Gorter

摘要

Purpose

Access to appropriate and clean toilet facilities is essential for children with Hirschsprung Disease (HD). This study aims to assess how parents of children with HD perceive school toilet facilities.

Method

A cross-sectional survey was spread among parents of children aged 4–13 years with HD. The questionnaire addressed the frequency of toilet use and reasons for positive or negative experiences, with open- and closed-ended questions, for quantitatively and qualitatively analyses, respectively.

Results

Forty-four parents completed the questionnaire. The median age of the children was 7 years (IQR 5.3–10.8). Five (11.4%) children never used the school toilet, 16 (36.6%) used it for urination only, and 23 (52.3%) used it for urination and defecation. Positive parental experiences (29, 65.9%) were associated with the possibility for the child to clean themselves at school, while negative experiences (15, 38.6%) were linked to the absence of child-specific toilet rules. Qualitative analysis revealed six influencing themes; assistance, possibilities, school rules, medical nature, toilet facilities, and information.

Conclusion

Toilet avoidance for defecation remains common among children with HD. Improvements in toilet facilities, support, and individualized toilet policies may enhance well-being in this population.