Access to Care and Therapy for Kawasaki Disease in Morocco: A Kawasaki Disease Arab Initiative (Kawarabi) Multicenter Survey
摘要
Kawasaki disease (KD) is a childhood vasculitis with common pediatric ailments features. The KD coronary tropism and delayed diagnosis lead to long-term consequences. A 42-question web-based survey, developed in collaboration with the KD Arab Initiative (Kawarabi), covered pediatricians in charge of KD across major Moroccan cities. Responses from 18/23 (78%) contacts covered 12 universities and 2 public health hospitals, and 4 private practices. Main responders (9 pediatricians, 3 pediatric cardiologists, 2 pediatric and adult cardiologists, and 2 pediatric rheumatologists) follow the European (55.6%), the American (27.8%) guidelines, or local consensus recommendations (16.6%). First-line treatment was intravenous immunoglobulin (88.8%), or corticosteroids (5.5%) or acetyl salicylic acid (5.5%) monotherapy. On a scale from 1 to 10, KD knowledge was rated high (5 to 8) among the medical community, but low (1 to 4) in the general population. There was inequity in access to care and treatment options, varying from almost impossible to excellent. Post-discharge follow-up was carried out by pediatricians (77.7%), with access to pediatric cardiology (61.1%). Anticoagulation was available (88.8%) using anti-vitamin K or low-molecular-weight-heparin. A 10-year expert opinion estimate of KD shock syndrome, giant coronary aneurysms, myocardial ischemia or acute coronary syndrome, and coronary artery bypass grafts, totaled 62, 74, 13, and 9, respectively. KD remains a challenge in Morocco despite dedicated professionals. National seminars and collaborative research initiatives can be optimized with international engagements. Adherence to standardized diagnostic and treatment protocols, making intravenous immunoglobulin availability a national priority requires partnership with government agencies and healthcare officials.